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As some of you may already know, the ATA is doing a walk for the cure on May 16, 2009. There is a physical walk in Irvine Regional Park and a virtual walk online. All donations to to the walk or in support of walkers will help fund research, just like the research going on at UCI. Just go to ATA.org for more info.
As I am a student/part time worker, money has always been an issue, so I will be a walker and gathering sponsors as well (if anyone is willing to support my walk i would be eternally grateful). Whether or not the ATA will ever come up with a “cure” is debatable, but more research and treatments couldn’t hurt.
All the best,
I wanted to ask you about possibly the most ridiculous thing I’ve ever done. In attempting to bring a bit of comedy into the tinnitus drama, I created this video called “The Mighty Tinnitey.” It’s here:
But before you even press play (if you haven’t already), it’s been up for a while and has gotten all of 21 hits, and just maybe, deservedly so. It really is totally ridiculous. I don’t even know why I put it out there.
Except that when I just watched it before writing this to you, it made me laugh. Now it’s me making myself laugh and I have no idea if my sense of humor even relates to yours or even comes anywhere close to “normal.” For example, I really like the movie “Galaxy Quest.” Does that make me crazy, goofy, dumb, silly…?
Anyway I had this totally crazy idea, and that is to create a short video together as a community.
The name would be something like: Tinnitus: Tamin’ the Mighty Tinnitey
It would be a cartoon or something like that in which the Mighty Tinnitey gets tamed by taking “him” out of fight or flight and into well-being.
There would be a really loud constant ring that moves into silence over the course of the video.
It would be like a symbol of what we are doing at CureTinnitus.org, and I can do at least some of the voices if not all of them. But I seriously can’t draw. I guess I could use my hands and make some kind of hand-puppet episode, but would that be cool or funny or just plain stupid?
The idea is to tame the “Mighty Tinnitey” with a funny short cartoon/video that we created together as a community.
The opening could feature a second or two of the Tinnitus Characteristics we’ve learned about:
High powered life
then the overachiever turns into the Mighty Tinnitey
Or this amorphous blob energy thing slams down into the person and rages out of his/her ears and the person gets “T.”
We then show the main components of what we are learning at CureTinnitus.org. Lifestyle, Therapy, Body Work, Mental, Spiritual, Emotional, Physical levels, Having a Support Network to Let Go into, etc.
…and we tame the Mighty Tinnitey…all in a short funny video.
a) would that be cool?
b) can you help out, because I basically don’t have the skills to do this
c) would it be funny or worth it?
OK…wanted to get that out to you!
I kicked this show off with possibly the most antagonistic question I’ve ever posed Julian. The credibility of this site, his credibility, and our entire effort at CureTinnitus.org is put to the test. After a jolting start, this show wound up being quite soothing. I hope that I represented the “anger” in and with tinnitus well, and that this show serves our community long long long into the future.
Here is a YouTube Show Excerpt for folks getting to know us. The Complete Archived Show is available for members below…
Transcript Available for members below (preview for visitors)
Dainis: Welcome everyone and welcome to the 5th episode of the Cure Tinnitus show. My name is Dainis Michel. I’m your host and we have Julian Cowan Hill as our guest expert. Julian had tinnitus for 20 yrs and he healed himself. He is a craniosacral therapist and he works with core process psychology and Buddhist psychology and has over 3000 hours of work with clients and he has dedicated himself to helping us get better with tinnitus so Julian thank you very much for joining us and for being here and helping us. I’ll tell you about how the structure of the show is. I’ll start with a few announcements and then we’re going to cover questions that I gathered during the week and then we’re going to do a one on one session between me and Julian about my personal tinnitus and after that all of will be able to do an exercise together.
As questions come up in your mind just chat them over and we’ll have time to focus on your questions towards the end of the show. One of the announcements that I’ve got is really interesting. Its kind of the theme for this show: and the theme for this show is what relieves and what aggravates tinnitus. We have a post on that in the curetinnitus.org community on what aggravates and what relieves tinnitus. So let’s just keep that in the backs of our minds as we go through the show. One of the announcements was about an article that’s available to the community “what are tinnitus people like?” and that’s actually from Tinnitus: From Tyrant to Friend” that Julian wrote.
A member wrote: “That list is somewhat frightening especially when I can identify with at least 80% of it. But with the help of this site I am leaning to deal with such things and my tinnitus is becoming less and less noticeable.” Isn’t that neat? And I wanted to say thank you so much for sharing what’s working for you, thank you. Another announcement is that I discontinued the free membership preview in the format that it was in before. We will have some free “getting to know you” content for e-mail subscribers so you can keep that in mind if and when you recommend “curetinnitus.org to people. These curetinnitus shows are going to become more private in the future. I’m not sure about the details of that but we’ve got a lot of efforts going outward and it’s going to become important for curetinnitus.org as an electronic and online community to develop reciprocity and fair exchange and just not broadcast out but in the sense of community to make them a little more private because right now we’re just available to everyone. I interviewed Paul Tobey who is a pianist Wednesday of last week and I want to let everybody know that after the interview I was editing it and my wife looked over my shoulder and she heard a little bit of it and she wanted to watch the whole thing so we wound up watching the whole thing before going to bed. So there’s an interview with Paul Tobey. He’s created a product called “tinnitus-free living” and you can check that out on the member area. Somebody sent us a comment saying “I’d like to see a deep relaxation package/product with soothing music, guided meditations, a self-help questionnaire and resource material.” Thank you very much for helping let us know how we can serve you better. That’s a big part of the curetinnitus.org community. For you to let us know what we can do for you. We do have some meditations and there are some exercises in Julian’s book, Tinnitus: From Tyrant to Friend” and we’re working on putting together some meditations with music. We’re still looking at how we can do that best. Again, I do have a satisfaction survey where I’m going to be calling members for a 15 min survey on your experiences at curetinnitus.org and that’s going to start on Monday May 11. I’ll have a post in the community about that and I’ll be able to make direct contact with members who choose to participate and I can ask them how they like it and what we can do better.
Just so you know, Julian and I have been working on a “recently acquired tinnitus” product and it’s been really fun and it’s been really engaging so we’re putting that together and it’s turning out to be really fun.
On to questions gathered. I’ve got a steamy one. This is SO nasty.
Are you ready?
“I find your claims, Mr. Michel, to cure tinnitus to be a bit arrogant when experts like the doctors at OHSU (and I mean no disrespect to doctors I’m just emphasizing the word doctors) admit they don’t have the answers. Just what are your credentials to be appearing as a self-proclaimed expert and guru here. I see no medical referencing credentials regarding yourself. The writing I see here causes me to put you in the same boat as Dr. Phil and that is sad that you choose to self-create such a phony persona. The latest dribble you e-mailed just proves that to me. Too bad that many many real people are seeking relief but I won’t follow a self-proclaimed guru with no reality check.”
Now Julian, I don’t know if you want to respond to that. I have a bit of a response. Maybe I can do that first which is “who is this person talking to? Is this person talking to you? Or is this person talking to me? Is this person talking to Kevin Hogan or Dr. Mike Matthews from sharedcare.com who is a retired family practitioner but he then joined our community and made a few posts. Are you talking to Paul Tobey? Maybe, Julian, you can do a better job of responding.
Julian: Well, this person sounds very angry and I don’t think this program is about gurus at all. A guru is when you (more…)
Focussing on a candle, fire
Being listened to
Eating well in good company
Sound of water, wind, rain
Sound of kids playing, laughter
Chilled radio station
Having a good cry
A good night’s sleep
Going on holiday
Clear relationship boundaries
Exploring new things
Feeling safe and secure
Belonging to a group
Making new friends
The natural world
Being inspired by others
Allowing awareness to open
Studying something new
Art or craft
Slow calm activities
Being by a river
Lying in a hammock
Falling asleep during the day-time
Focusing on eating when you eat
Burning lavender, rose, neroli oil
Getting away from it all
Soaking up Amazing views
Appreciating the basics of life
Half-full not half-empty
Tickling each other
Downsizing to a realistic amount
Respecting self and others
Being honest and open
Not needing to achieve
Being good enough
Connecting to the larger picture
Being allowed to make mistakes
Letting things be
Steady regular exercise
Managing change gently
Looking after yourself lovingly
Letting things be
Living through the body
Needing to achieve
Never good enough
Bombarding the mind with TV
Too much stimulation
Being a perfectionist
Being too meticulous
Bad night’s sleep
Clubbing, loud concerts
Watching the news
Receiving Bad news
Needy clingy people
Being dumped on
Too much pressure
Doom & gloom
Bottling things up
Taking on too much
Casual adrenal sex
Unclear boundaries with people
Unresolved childhood patterns
Masses and crowds
Too much visual stimulation
Lack of human contact
High speed activities
Extreme cold or heat
Irregular eating habits
Beating yourself up
Drastic sudden change
Being taken over
Invaded personal space
Living in your thoughts
Acoustic Nerve damage
Blow to the head
Listening out too much
Tells you exactly what you need to do to follow in the footsteps of people who have healed themselves of tinnitus. This is a self-help program that enables you to put the key elements into place for proper medical support, therapeutic support, and lifestyle change so that you can control and heal your tinnitus. Join Now
(These are select testimonials from the practitioners and information providers CureTinnitus.org is associated with. They are relevant to you, because we will show you how these patients did it, and how you can follow in their footsteps, even without seeking treatment from these particular practitioners.)
“After the 12th treatment session, my tinnitus was gone, but it came back every two to three weeks for a few hours. In my therapeutic sessions, we found out which situations they were. Instead of wallowing in the situations, I spoke without accusation with the person responsible. Since I’ve started doing that, I have not had tinnitus again.” — Dr. Greuel Patient Testimonial
“I had meant to write before as I have had your tapes from July now. They have been wonderful and saved my sanity. My tinnitus is greatly reduced and my Meniere’s under control. I return to your tapes as I find them excellent and I use them every night to go to sleep with. Thank you.” — Anne Clarke (Kevin Hogan client testimonial)
From late June, all through July and August, into September, wherever I was, I was virtually free of the thing (tinnitus), and I have no hesitation in acribing that to the therapy and in thanking you for it. There was a return when I got back to school but the odd thing is that it doesn’t really bother me!! I seem to be able to ignore it, simply because I know that it can vanish. — Alan (Julian Cowan Hill Patient)
“I have suffered head pain 24 hours a day for the last 38 years along with fairly severe tinnitus. So far I have had 5 sessions of Craniosacral Therapy durign the course of which the tinnitus symptoms have been greatly reduced as well as the head pain. I am sure with patience and further treatment the improvements will continue. I am very impressed and deeply grateful for the understanding, dedication and skill of Mr Cowan Hill which is helping to mke my life much less stressful and more painfree.” — Eleanor
(These are unsolicited testimonials from members of the site, they are just streaming in, it’s really wonderful!)
“I had major breakthroughs for all listening to you and Julian talk. Thanks so much forall your work.” –R
“Personally, I’ve gotten tremendous value already from your conversations with Julian” –A
“Delighted, appreciate it beyond words…” –L
“I really appreciate what you’ve put together. Truly comforting.…LAUD you for you compassion & initiative on this !” –B
“I REALLY appreciate your asking Julian about my questions this morning! You posed them in such a clear and dear way and protective of my ‘identity”. It is amazing that I was home and able to listen. I had over slept, (I am on vacation) had missed an early appointment for my car and so I called, cancelled it and looked on my computer and it was 8 minutes to the broadcast! Was I surprised, delighted and grateful to hear you both discuss the issues that are pressing me. I thank you. I also am taking your website and Julian’s advice and working on awareness of RED-ALERT and difficulty surrendering or relaxing into support. Wow, good stuff. Julian reminds me a bit of Ekhart Tolle. Doesn’t he you? And funny to say, you remind me of myself when you are questioning him! With gratitude” –L
“…The conference calls are great as we can help each other” –R
“Thanks for all the work you’ve done to put all this (website, information, broadcast) together.” –A
…with the help of this site, I am learning to deal with [edited] and my -T- is becoming less and less noticeable. –B
What a great site….Thanks so much! I already referred the Yahoo forums tinnitus group to your site and also 2 friends with tinnitus. –S
I just want to add that you are truly an inspiration and I hope that more people find your website. I find your videos (and especially this one) to be enlightening, and it really gives me hope, and I’m sure others too. God bless, –J
Thank you and keep up your solid and needed work. –E
You can have such experiences too. You can experience wonderfully refreshing AHA moments, and you CAN begin to take care of yourself properly. That is what we are here to help you learn to do.