OK, we’ll be honing in on your questions for the next show here. It’d be pretty neat, I think, if we could launch the new site before this show…
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Comments
LAUD you for your compassion and initiative...
"I really appreciate what you’ve put together. Truly comforting.…LAUD you for you compassion & initiative on this!"
--Bob M.
Appreciate it beyond words
"Delighted, appreciate it beyond words…"
Julian Cowan Hill R.C.S.T.
"If you really look after yourself and learn to get in touch with how you are feeling inside and learn to process that, that is the way out of tinnitus. Most people spend their whole lives running away from themselves, filling their lives with furious frantic activity, proving this, doing that. The best thing you can do is sit with yourself and notice how you are, how you are treating yourself. And if you can treat yourself with loving kindness and really accept how you are with a really wonderful, open-hearted, deep, caring approach, just like you would mother a baby, for example. If you can really look after yourself, your nervous system will change. Nothing is fixed. Everything is constantly changing and flowing, and it is entirely dependent on the way you approach yourself. Look after yourself, and your tinnitus will back off."
Wow, good stuff...“I REALLY appreciate your asking Julian about my questions this morning! You posed them in such a clear and dear way and protective of my ‘identity”. It is amazing that I was home and able to listen. I had over slept, (I am on vacation) had missed an early appointment for my car and so I called, cancelled it and looked on my computer and it was 8 minutes to the broadcast! Was I surprised, delighted and grateful to hear you both discuss the issues that are pressing me. I thank you. I also am taking your website and Julian’s advice and working on awareness of RED-ALERT and difficulty surrendering or relaxing into support. Wow, good stuff. Julian reminds me a bit of Ekhart Tolle. Doesn’t he you? And funny to say, you remind me of myself when you are questioning him! With gratitude”
-- L.G. Connecticut
I really feel you're going to make some peoples' lives millions of times better. I really do.
I would just like to say thank you for what you are doing. This world is really lacking people like you that aren't all about themselves. It really makes me pleased to see that you're getting your and Julian's ideas out there, and I really feel you're going to make some peoples' lives millions of times better. I really do.
--Samuel Diego-Cunha Wetzel, Edmonton, Alberta, Canada
Already Recommended 2 Friends..."What a great site….Thanks so much! I already referred the Yahoo forums tinnitus group to your site and also 2 friends with tinnitus."
--Meta_4
Solid and needed work"Thank you and keep up your solid and needed work."
Eric G.
Saved my life...--B.
Kevin Hogan
"It's not unethical to say that it's incurable, it's just totally incorrect. In fact, if I go back and I look at the cases that I've worked on, and I've worked with thousands of people over a decade, and the vast majority, are either dramatically better, or their tinnitus is gone. One of the two."
...my tinnitus was gone
""It is not coincidence that I saw your e-mail this am, right at the time I realized my tinnitus was gone."--E. B. California
Dr. Hans Greuel
"I can say in good conscience that tinnitus is curable. That's the bottom line: that tinnitus is curable, and I dare say, for just about everyone who comes down with it."
Please don't tell the ATA"As I may have mentioned earlier, ATA.org is incredibly mediocre (if that much!), compared to your organization. I even found the British T. site far superior to ATA.org and now, I have found you guys!!!"
--R. S. Illinois
(Honestly, we want to stay friends with the ATA and we cherish the work they do...so let's keep this one between us...)
Great Conference Calls“…The conference calls are great as we can help each other”
--R
Paul Tobey
"It's such an incredibly low volume if I recognize it once a week it's just because I'm out in the backyard looking at the stars thanking the universe for what it has given to me, and I go 'how did I get to this point?" Oh yeah tinnitus helped me get here. Let's listen to it for a second, let's pay hommage to the tinnitus for a second and go thanks you did some good work. Thank you.
T is becoming less and less noticable"…with the help of this site, I am learning to deal with [edited] and my -T- is becoming less and less noticeable."
--B
You Are Truly An Insipration"I just want to add that you are truly an inspiration and I hope that more people find your website. I find your videos (and especially this one) to be enlightening, and it really gives me hope, and I’m sure others too. God bless."
--J
Literally clearing the fog from 20 years of T
"the information, research, support, and shows with dainis and julian are literally clearing the fog of the T i have endured for 20 years. it’s not about the ears it’s about the body and soul. i’m sure ancient wisdom had more answers to T than the entire medical community has at this time. this site is really quite groundbreaking."
--S
Mental Clarity And Calm
"A very simple thing - progress for me today was after work,instead of "rushing" home because of fatigue, I walked down another street and sat in the sun with a warm beverage. This resulted in some mental clarity and calm, as well a experiencing a choice of a positive new behavior. It felt expansive...'cause T can lead one to be hemmed in."
--Member s.
RE: Gone?
"After a short period of T-free happyness, my T (scale 4/10) came back for a few weeks (stressfull times, bought a house etc..). Did lots of relaxation exercises, stretching and yoga and now it's gone again (scale 1/10). I would like to ask Julian about the following [...edited...] Keep up the good work!!!"
--Member R.
Much Calmer About Tinnitus Now...
"When I started the programme shortly after developing T, I was terrified of tinnitus and felt that I had no control over it. I lay awake at night panicking that it would get worse. I am now much calmer about it, thanks largely to this site and Julian Cowan Hill's e-book which I strongly recommend. I am beginning to realise that my pace of life consistently exceeds my energy levels and that my T is probably connected to this. For me, T fluctuates a lot, but when I have a bad patch I comfort myself that it will probably lessen after a few days if I take better care of myself. I have only had a few minutes of total relief in the past five months, sometimes before going to sleep or early in the morning, but I'm aware that I have a long way to go in the personal wellbeing stakes, so it would be surprising if I were already better. The school holidays are a very busy time for me and the fact that I have got through them without a major tinnitus meltdown is itself encouraging. I shall be tuning in for the next show! Best wishes, D.H."
--Member D.H.
T subsided...
"After suffering from a catastrophic tinnitus for almost two years,it subsided in the last month to level 5 in a scale of 1-10 and sometimes even to level 2...My question is what will happen when I..."
--Member a.
Taking Better Care Of Myself
"information on T is settling in to my psyche, some underlying depression issues are being addressed, I'm getting on with life, taking care of myself better, and doing things I enjoy more. I have even recently shed a negative friend or 2...thank you"
--Member s.
Your site has helped IMMENSELY...
"I'm just 26 and enjoy loud music so was terrified when I thought my tinnitus was getting so bad that I'd hear it all the time. I went into a state where I kept monitoring it and thought that it had suddenly gotten really bad. This was about a week ago and coincided with a very stressful day so I suspected that had something to do with it. Your site has helped IMMENSELY in alleviating my concerns about it and now I'm pretty much totally over the fear that I'll have ringing in my ears my whole life. In fact, since a few hours after reading the information on your site, I've stopped noticing it at all, and I'm not worried about it when trying to sleep (I don't hear it during the day now because I'm not listening for it and I'm more relaxed so its quieter). Now that I'm proactively relaxing myself and trying to be happier in my life, the ringing has mostly subsided and I can only hear it when I put my fingers in my ears to create complete silence. From suicidal thoughts to complete peace in under 2 hours. Thank you again!!" PS: I even went to a Metallica concert last night and forgot to bring my earplugs -- and the tinnitus has not flared back
-Tegan Nejad: Perth, Australia
PPS From Dainis: Yes, we do have stories like these, though for some members, the process takes longer. In any case, it's enjoyable to come "out" from tinnitus and experience well being. Thanks Tegan for sharing :-)
Hi Dainis,
You and I had an email exchange about the potential berefits of low level laser therapy for hearing-loss related tinnitus, specifically Dr. Lutz Wilden’s practice in Bavaria and you had suggested I post here…I had first read about this from another of our members several months ago, contacted Dr. Wilden (most helpful), used one of his home devices with some improvement, then visited his office in February. As we all know, no single form of treatment works universally, but I am pleased with the continued improvement and this is in my view another modality to be considered seriously; it has been around for many years, the basis is logical (to me), yet surprisingly little is known by most ENTs, who are not trained in or have not really focused on treating tinnitus……and ‘learn to live with it’ is not an acceptable suggestion! See informative website http://www.dr-wilden.de, and enquiries can be made by emailing him the one-page history form and audiogram.
Would be interested in Julian’s comments on this. Fyi, I have also found cranio-sacral work to be very helpful.
Hi Richard, Yes, and I remember mentioning Dr. Wilden on a Cure Tinnitus Show at one point. Where many “tinnitus liberation seekers” fail is in doing too little too sporadically, or too much, but only sporadically, and with regard to Dr. Wilden’s practice “putting all your eggs in one basket,” which quite obviously, you have not done. The thing about the high dosage Low Level Laser Therapy, to me, is that, well, it looks relaxing. It also looks pleasant. And if Dr. Wilden is “most helpful,” then you have a missing component in Dr. Wilden that many tinnitus patients seek, namely, compassion.
I am going to relate Dr. Wilden’s therapy to our 4 CureTinnitus.org Program guidelines, which can be summed up as 1) therapy on psyche 2) physical therapy 3) steps that enhance personal well being that you do on your own 4) letting go into a network of support. So, basically, it seems like it’s more or less a physical treatment. But, if it’s also relaxing and pleasant and you can do it at home and actually need to take a break to do it, then you are incorporating a few more of our guidelines. If Dr. Wilden’s persona is kind and compassionate, then you have someone on your side, someone in your “network of support.”
I mean, it’s just simply great that high dosage Low Level Laser Therapy is helping you enough to mention it here. Anyone drawn to it, should, in my opinion, give it a shot. Why exactly not?
Basically, a doctor or therapist who just tells you “learn to live with it” is really doing many people an incredible disservice. For me, Richard, just your “voice” in this post has a certain realism and calmness. You write “no single form of treatment works universally,” right! So no need to get excited. I mean, if you abstract “achieve well being” into a “form of treatment” then you get a kind of conundrum effect, which is a bit silly: “ahh, you are sick, be well, that’s it.”
However, Julian’s article on “take care of yourself properly and your tinnitus will take care of itself” is really really really worth considering, and is about as close to a “single form of treatment that works universally” as we can get. However, “take care of yourself properly,” as simple as it is, sometimes doesn’t give people all they need to take the next steps.
So, we essentially repeat “pursue well being,” and divide it up into 4 “areas of life.” Mental/Emotional/Spiritual, Physical, Personal, and Social.
From the looks of things, if you are also seeing a counselor or psychotherapist you like (who works for you), and you are doing your personal relaxation stuff (like going for walks, sailing, a hobby (again, doing what works for you), and you have a friendly network of family and friends or some kind of social support group, then you will have all of the components of the CureTinnitus.org Program in place.
There is a wonderful turning point a person with tinnitus can have in evaluating treatments, and that is moving from “did it work?” Meaning “is my tinnitus gone?” No, oh my god, this person is ripping me off how awful die and burn in h*ll you scam doctor therapist whoever %$§$! To “was it pleasant?” or “did it help?”
Doing things that help a little…regularly, can add up to a whole lot of help. Adding up things that help a little in each of our 4 Guidelines can add up to a very healthy and appropriate therapeutic recovery plan.
Certainly a helpful post, Dainis….based on my own experience, your ’4 areas of life’ and Julian’s approach work well eg. in avoiding a tinnitus ’spike’ and in calming the system down on a progressively more permanent basis…leading to lasting healing.
Perhaps a discussion of how people with sensitive nervous systems and who are generally “over-reactive” or “hypersensitive” react to the development of the “awareness” of tinnitus differently than people with stronger emotional makeups. Example: my first cousin developed tinnitus but just was so calm about it and eventually he habituated to it, no big deal. I, on the other hand, went berserk for a while, claiming my life was over, until I found this website and Julian and Dainis AND was put on a benzodiazapene to calm me. I truly believe based on personal experience that there are connections between the panic some people experience when tinnitus rears up suddenly in some people and general anxiety disorders, etc. in the brain. Same centers affected? Have done some reading on this and wouldn’t mind a discussion if it’s possible. People with OCD, GAD, tinnitus – overactive nervous systems yes, but perhaps some research is pointing to a connection? I was prescribed Ativan (a benzodiazapene) to treat the anxiety and tinnitus and it has worked well. Yes, I know it’s “addictive” but the benzos keep the panic down and I’ve adjusted to the T…..or it’s lessened…..actually afraid to wean off the benzo for fear of return of tinnitus. Now that I think of it, can we have a discussion too about medications like benzos that are often used to treat the tinnitus because it somehow calms the area of the brain that produces the T in the first place? Anyway, some suggestions……thanks.
definitely worth looking at. i also know someone who developed tinnitus, freaked out for a few days, then just figured, “eh, no big deal,” and moved on. at least that’s what he did on the outside. OCD seems a bit odd to me, i mean, most people who accomplish anything need to be diligent. it’s the “freak out” part that seems to pull people…[Read more]
Hi Dainis and Julian!
Thanks for everything. The new website is better but still, I have not checked it out to thoroughly.
I am glad to hear that you are planning this show to deal with the deeper stuckness. I have been helped tremendously by the shows and this website and you guys.
I am dealing well with my “T” but have not as yet had it go away. Where can I look within, and what areas can I discover that are the cause.
My ability to have SCT are limited due to my travel schedule. But my dailiy meditation and calming meditations and yoga are regular.
thanks again… Sajjan
we will certainly cover your questions on the upcoming show!
Hi Sajjan, thank you very much for your kind comments. From where I sit, your next steps may include: map your current therapy plan to the 4 Guidelines, which can be summarized: psychotherapy or equivalent, CST massage physical therapy or equivalent, personal relaxation stuff, letting go into a network of support. As I understand it, you help a lot of people, can you look to see if some “stuff” may be hanging out with you from other people? Quite a wonderful resource for people who travel especially is using “grounding technology.” By that I mean sleeping using a grounded sleep system that you plug into an outlet (that is properly grounded) and you experience the wonderful healing energies of the earth.
You will see a lot when you look within, and what I see from here is pretty clear. If your ability to have CST is limited due to your travel schedule, maybe that’s actually not really true. Your ability to have CST from the same person is limited, but your ability to have body based therapy is not limited. It could become a part of your contract. You land, settle, and at some point before you go, you have body based therapy of some kind with a particularly resonant and helpful and healing person who is a part of the group that invited you. You might even get to experience all different kinds of body based therapies. Maybe even kinds you’ve never heard of.
You are highly skilled at meditation and calming on your own, and you may want to figure out a creative solution for personal counseling. Some kind of “in person when you are at home, via skype when you are not” … not sure.
Next is your network of support. If you have more of a circuit that you travel, then it could be really nice to figure out whom you’d trust to lean on a bit when you’re in town. Finding synergistic physical in person friendships could be a helpful step.
Essentially, I am just mapping the 4 CureTinnitus.org Program Guidelines to what you’ve posted and intuitively seeking ways to supplement your current healing plan.
In gratitude,
Dainis
Hi, thank you for the website. I signed up on the main site, I’m trying to figure out how to login to the dev.curtinnitus.org site, it says that I am not registered at that site. Thanks in advance!
hi, actually, this comment is at the dev site, so you are here. right now, i’m handling new registrations personally until we’re up and running with the newly launched 3.0 site. please feel free to be in touch if you have any questions.
Thank you both for this site it has been really helpful for my attitude in dealing with my recently acquired tinnitus.
I know that a lot of people like myself rely on fans and other noise to help reduce the level of their ringing. I would be interested to hear you two talk about that technique, perhaps discuss whether you recommended spending…[Read more]
Dear Jake, masking is a perfectly appropriate step in learning to habituate. I used fans for about my first year with tinnitus. They helped, I used them, when I got good enough at reducing my tinnitus, I stopped using masking techniques. A litmus test is “how does it feel for you?” So, if you feel good about the sonic environment you are in, if…[Read more]
Thanks for that response, it does make sense to me. I would have to agree with you that I feel I am currently learning to “cope” and I don’t feel like it will be a good long-term strategy. I feel that it is, in some sense a fight-or-flight type of strategy in that the masking is a form of flight from the ringing sound. But for right now I…[Read more]
You may be surprised by this, but I listened to the first few of these CD’s and found them very relaxing: http://www.perfectpitch.com/ It teaches a kind of “non-critical” listening. Much much more relaxing than what I “learned” in aural skills in college. Likely sometime around this fall, I will engage more in my personal research regarding…[Read more]
that’s interesting I may have to give the CDs a try. I do also notice that my hearing has gotten way better, or at least I’ve become extremely aware of audio in a way that I never was before. Everything from the subtle sounds of appliances in my house to the noise of wind, traffic and such outside. I notice all of these things to a degree…[Read more]
This show is yet to be hold?
it’s pretty clear that CTO has been going through changes. some have asked “are you still around?” we have not done show #28 yet, and there are very good reasons for the “pause” in live shows. certainly, ask away — this is “our” site and this website is here for your healing. regardless of an upcoming show or not — there is an absolute wealth of healing information at this site that can facilitate your healing path.
i do think we’ll be having show #28 soon, but in the meantime, let’s deal with your questions via text comments, posts, etc.
ok?
hang in there ya’ll cuz the holidays can be rough for T!
we can do it!
test!